For the last month or so we’ve been fighting to help Isaac with his movement disorder & dystonia, and now to make things worse he’s not able to sleep for more than a few hours at a time. Night times are the worst and hardest - for all of us. I’m really struggling watching Isaac like this. He’s my baby, the boy you see in the first photos is who is still in there, he still wants to run through the leaves, to ride his bike, to hold his sisters hand.. but his body is letting him down. This movement
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